Spring and the Cycles of Change!

Welcome to the Spring 2019 edition of Family Matters – Families Matter, our new blog authored and curated by FSDP’s Guest Blogger–pioneering harm reduction therapist, educator, advocate and author Dee-Dee Stout.
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I have been a Star Trek geek for as long as I can remember.  This infatuation even rubbed off on my son who designed the current World Tour stage for the multi-award- winning mega-band Muse to be shaped like a Klingon Bird of Prey[1].  I never quite understood my fascination with all things alien, watching the new Star Trek Discovery series week after week in tears.  Really??  Crying over a TV show, and a sci-fi show no less??    Well, after some 50 years of dedication and fanaticism, I think I figured it out:

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To borrow a phrase:  it’s the future, stupid.  The past is finished, complete, even if I do mine it reasonably often, still attempting to understand things as they unfolded oh so long ago. There is wisdom that has come from that exercise as well as some futility.  But it’s the future that really does it for me, makes me weak-in-the-knees excited & emotional all at once, like the old roller coaster The Big Dipper in Santa Cruz does every time I ride her.  And the relationships, the dedication, the incredible sacrifice and love emanating through every episode brings my heart into my throat with regularity.  That all makes me desire to keep going – which some days is a monumental feat I will admit briefly – as I see real possibility for us all, the Human Race.  And besides, if a Vulcan can ask for forgiveness (Sarek, in Part 1 of the second season’s finale) who am I to not give such a gift to myself and my families:  both the one of chance and the one of choice?  It appears this is the work of my future, the work of ‘Change to Come’.

And so we’re onto Change for this month’s blog.  And here’s where I’ll begin…

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Change is about leaving what we know behind, jumping into the abyss of the unknown just as a starship jumps into warp drive.  Never knowing what’s on the other side should be exhilarating for me (Remember? Rollercoaster lover?) and yet it’s always filled me with fear & uneasiness.  I’m still here though, alive – as are many others who shouldn’t be – and that’s all due to this thing called Change and those who have ridden this wave with us all.

“Most people never get a chance to learn what’s in their own hearts.  If we figure it out it’s often not what we expected, or even what we would have chosen for ourselves.” 

—Capt. Christopher Pike, 2019; Star Trek Discovery, episode 13

What’s in my heart?  I wondered when hearing this line of dialogue.  As so many others have too, I have studied several religions at various points in my life. My first exposure was as a child when I was baptized in the Congregational church of my maternal grandparents, and then as a grade school-age youngster in my family’s home (in Midland, MI) at the United Church of Christ (UCC) which they helped to build.  I am proud of the heritage of the UCC as a church of social justice and inclusivity.  Even at the height of my drug use, my minister refused my mother’s request that I not be allowed to attend nor teach at the church.  He believed in me and the idea that Change could only happen in a place of love & inclusion.  He also preached that God was not something outside of ourselves but rather inside of each and every living thing.  Finally, he told us that our church was about ‘accepting the unacceptable’ of society (that belief is partly what drew me early on to helping problem drug users ironically).  I also recall as a teen wishing to become Catholic as I saw many of my drug using friends able to attend confession each week which they believed absolved them of their “bad behavior” as well as allowed them to repeat it the following week.  To me, it simply appeared that Change for them was easy[2] – and I was jealous.

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In the pagan Wiccan traditions, every season brings Change of a new variety.  As we leave April and head into May, the Wiccan calendar moves to celebrate the festival of Beltane.  This date is also known more commonly as May Day.  It is a time for birth and renewal:  pastel colored eggs to signify fertility; a Maypole around which songs are sung while long ribbons twirl while celebrants dance around the phallic symbol of the pole, and rituals around fertility, crop blessings, and romance abound.  After a long hard Winter, Spring brought promise to our ancient people’s here; a promise from someone, somewhere, that they had not been abandoned nor forgotten.

I see Change as a promise to us too:  a promise that no matter what, nothing will ever remain the same; all will be well; don’t worry, be happy!  Within addiction, this is ultimately the challenge as there often seems little to be happy about when things turn bad.  When I was using drugs problematically, I see now that a good part of my reasoning was to keep things the same, status quo.  That provided me with ritual, some strange stability, and again ironically, a sense that I always knew what to expect.  As a person with a history of trauma, I yearned for something to keep me centered, something expected.  It’s also what kept me in violent/abusive relationships.  I recall saying out loud finally that I understood that “to know something – even something violent – was better than leaping into the unknown.”  Some people believe that those of us who remain in these violent relationships do so because they’re comfortable, that we become comfortable with the abuse.  I disagree. I say we become familiar with it and that’s the point:  it is better to stay with what we know v be so terrified that Change could be worse.  That’s how frightened we often are of Change.  IT is the enemy.  It is the same with addiction:  fear of Change can keep us from trying something new.

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And this leads me to the topic of families and the people they love who problematically use drugs.  We all resist change to some degree.  To some degree we would rather stay in the status quo, in the familiar, than take a risk into the unknown – “to go where no one has gone before” – or perhaps we’d simply prefer that someone else makes the Change and not us.  But this isn’t how Change works!

Recently a post from my dear friend and colleague Andrew Tatarsky[3] (Board member at FSDP) came through my Facebook feed, which Andy had reposted from a colleague apparently having a conversation with Dr. Gabor Mate, the renowned trauma & addiction expert and author.  Much like my beloved Star Trek it, too, has left me in tears each time I read it.  I hesitate to repost this dialogue here for fear of offending people reading this blog.  But I am going to take that chance and hope you will hear the hope and joy and see the “Way Out” – as our Brit neighbors wittily call an exit – as I unexpectedly did after reading it. Bring the hankies.  Here goes:

“We weren’t quite finished yet. I wanted to know about family members who are dealing with addiction. What can they do for a loved one who’s caught in the grips of active addiction? Because when people are that deep in addiction, they’ve lost themselves—they’re gone in a way. I know I was. I know there was nothing my family could have done no matter how much they wanted to.”

Gabor didn’t agree with me. “You don’t know that. What you do know is what they tried didn’t work, but you don’t know that there’s nothing they could have done. In one sense, you are 100 percent right: There’s nothing they can directly do to change your mind. There’s nothing they can directly do to change your mental status. There’s no way that they can talk to you, advise you, control you, beg you, accuse you. That does not mean there’s nothing they could have done. Imagine if your family had come and said, ‘Chris, here’s how it is. We recognize that your addiction is not your primary problem. Your primary problem is that you’re in a lot of pain. And that pain is not yours alone. That pain has been carried in our family for generations. And we’re as much a part of that pain as you are. You’re just the one who’s soothing it with that behavior. In fact, you’re the one whose behavior shows us how much pain there is in our family. Thank you for showing that to us. So we’re going to start working on you, because we realize that we’re as much a part of it as you are. We’re going to take on the task of healing ourselves. We invite you to be there if you feel like it. And if you’re not ready, sweetheart, then just do what you need to do right now.”

“Families also have to decide, can I have this person in my life, or can I not? If I want them in my life, there must be certain rules, like they can’t steal from me and so on, but if I can have them in my life, I must accept them exactly as they are, exactly where they’re at, and 100 percent accept that right now they’re using because they feel they need to. I’m not going to nag them, cajole them, advise them. I’m not going to say a thing that they didn’t ask me about. I’m just going to accept that this is who they are and I’m just going to love them. That’s a rational decision to make. It’s equally rational to say, ‘You know what? It’s too painful for me. I can’t handle it. I can’t stand to see you do this to yourself. It’s too stressful. I can’t be with that, so I’m sorry, I love you very much, but I can’t be with you.’ That’s legitimate, too.”

“What is completely nonsensical—and unfortunately the pitfall for most families—is to try to be in the addict’s life and try to change them all the time. That’s the one thing you cannot do. So either accept or lovingly distance yourself, but don’t try to stay in there with the intent of altering the other person. To the addict, that signals only one thing: ‘They don’t love me the way I am.’ That’s my advice to families. I do believe that addiction in a person can be a healthy wake-up call for them and for everyone in their lives.” — Dr. Gabor Maté, Dead Set On Living

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Change, especially when we look at addiction(s), sure isn’t linear; not even close.  In fact, even the theorists behind the Stages of Change[4] now use a spiral model[5] rather than their traditional wheel.  Me?  I’ve always seen Change more like a pinball machine, and I’m no wizard:  you know, one minute you’re over here, the next down there, and a moment later, ding, ding, ding!  It’s unknowable, it’s exciting, and it’s scary as hell.  That’s the Change I know…and I am finally just beginning to like Change rather than fear and respect it like an overbearing & abusive parent.  Bottom line:  it always happens whether I like it or not!

If I may, this seems like a good point to insert briefly the 7 Stages of Change[6] (SOC) as they apply to any Change you might want to make, and of course I will provide you with references for more on them if you wish (apologies to anyone in the know here.  Feel free to skip this next part):  precontemplation, contemplation, preparation or determination, action, maintenance, termination & relapse/recycle.  In a nutshell, here’s the definition and task of each stage (please keep in mind that these stages aren’t linear; remember – pinball!!)

Precontemplation:  When my behavior is in this stage it means I can’t see it as a problem so I’m unlikely to see a need for change (think the old idea of denial).  Perhaps my family, friends, or employer is seeing a problem in my behavior.  So here the main task is to increase my awareness of the need to change – to help me/someone recognize that the cons of not changing are greater than the pros of change.

Contemplation:  This is the stage of thinking (insert Rodin’s The Thinker).  I see my behavior as being a possible problem but I’m not ready to commit to making a change.  Ambivalence lives here.  Think of this stage as “well, maybe I should make this change but…”

Preparation or Determination:  When my behavior is in preparation, you’ll know because I’m planning out the needed resources, discussing how and maybe even why I want to make this change.  I might even begin to take baby steps toward my healthier self.

Action:  In action, I’ve moved forward and state my intentions to keep on that path toward healthier living.  Any positive change[7] is the key here.

Maintenance:  Since I plan to maintain my change in this stage, I will need to work on recognizing obstacles and other speed bumps to my continued Change path.

Termination:  For the researchers, this stage was noted by the problem behavior being eliminated for at least 6 months.  This stage is often left out of behavioral health programs (including rehabs) however as many don’t believe this stage is reachable.  I believe this concept deserves review, and that “termination” should be viewed personally and individually.  For myself, I do believe my former addictive behaviors with alcohol and other drugs is done, finis, over with, hasta la bye bye.  I have all sorts of other problem behaviors to continue to work on but not those.  Others will likely feel more comfortable with termination being left out of the Spiral of Change.

Recycle/Relapse:  The researchers decided that the term relapse wasn’t good enough as it isn’t accurate for most people making Change.  This is because to relapse means to go back to the beginning, in this case to precontemplation. And while some people will indeed return to precontemplation, most will instead recycle back into one of the other pre-action stages.

 

 

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Spring appears to have finally come to the Bay area.  While we are all grateful to not have to endure yet another year of horrendous drought, we are equally grateful to get a respite from the torrents of rain that have devastated communities throughout our Golden State recently.  Even as I write this, we are being warned of a touch more showers coming tomorrow, hopefully the last spurts for the wettest April I recall in my 40 years here.  Spring is a natural time to think of change:  flowers blossom; mice mate and dogs give birth; the seasons shift as our little Blue Marble of a planet tilts on its axis once again.  Like the seasons, Change is both predictable and unpredictable at the same time: the only thing we can be sure of is that nothing will remain the same and that Change happens, constantly and without permission.  I can accept that or not but like the moonrise, it will happen everyday in spite of my feelings about it.  So will my Change.  I will continue to change and grow because to do otherwise will be more painful. This I now know for sure.  So, I will make room for the Change in the same way as the philosophical cat Garfield says so brilliantly: “Everything I’ve ever let go of has claw marks all over it!”  No one said I have to Change gracefully.  And I will wait to cry one more time at Part 2 of the final episode of this Star Trek series season to begin my long winter of wait for the next season to begin.  And the next season, and the next Change, will come gratefully – both for my beloved Star Trek and for all of us, if we can just hang on to each other a bit longer.  Let the adventure continue…

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[1] The 2019 Simulation Theory World Tour (www.muse.mu).  The simulation hypothesis or simulation theory proposes that all of reality, including the Earth and the universe, is in fact an artificial simulation, most likely a computer simulation, leading to the 1990s-influenced stage and costume designs. (Wikipedia, accessed 4.14.19; 2019 personal communication with Muse Creative Designer Jesse Lee Stout).

[2] Please do not interpret my comments here as a negative stance on the Catholic church.  This is merely how I saw things as a teen, quite simplistically.

[3] Andrew Tatarsky, PhD is the author of “Harm Reduction Psychotherapy” (Guilford Press) and the founding Director of The Center for Optimal Living in NYC.  He can be reached at http://centerforoptimalliving.com/.

[4] The Transtheoretical Model (TTM) of Change was developed by the Drs. James Prochaska, Carlo DiClemente and John Norcross.  For more, please see their academic websites:  https://web.uri.edu/psychology/meet/james-prochaska/;   https://psychology.umbc.edu/people/corefaculty/diclemente/; https://www.scranton.edu/faculty/norcross/

[5] See “Changing for Good” by Prochaska, DiClemente & Norcross.

[6] There are a lot of good sources for SOC materials.  Here are a few standouts: https://www.lifehack.org/676832/stages-of-change-model; “Changeology” by John Norcross; “Changing for Good” by Prochaska, DiClemente & Norcross; “Changing to Thrive” by Drs. Prochaska.

[7] Thanks to my friend, the late Dan Bigg, founder of the Chicago Recovery Alliance (CRA) for this simple phrase. For more on CRA, go to https://anypositivechange.org/

 

Introducing “FSDP Presents”: A Podcast Brought to You By Our New Partners at The Social Exchange!

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PLEASE SUPPORT OUR FAMILIES!

FSPD is excited to announce our partnership with The Social Exchange, a brainchild of the brilliant Zach Rhoads and Aaron Ferguson.

26233524_10103289292747830_6908264666812993265_oThe Social Exchange interviews the world’s leading intellectuals about a variety of social topics: addiction, social science, philosophy, and many more.  Zach is a masterful interviewer and through their podcasts they offer listeners cutting-edge information about each topic.

What’s refreshing and unique is that there is no rule that the conversations are agreeable or comfortable. However, each conversation is guided by an honest, information-seeking style of dialectic. On The Social Exchange, ideas are challenged, people are respected.

As part of the partnership, FSDP will have the opportunity each month to select an FSDP community member to be interviewed on the podcast on a segment called” FSDP Presents”. We’re proud to have Glen Carner, Licensed Mental Health Counselor  from Hawaii as the inaugural podcast guest. Glen has a paradigm-shifting outpatient addiction counseling program, Family and Addiction Counseling LLC  that uses a collaborative harm reduction approach that coordinates care for his clients with relevant community supports whenever possible. As you’ll hear in the podcast, he blends his expertise with unbounding enthusiasm and a passion to work with individuals and families impacted by substance use.

You can hear the podcast here and learn more about Zach’s work with The Social Exchange on their Patreon page here.

NEXT UP ON “FSDP PRESENTS”: Kenneth Anderson, a pioneer of alcohol harm reduction and Founder of the HAMS Network: Harm Reduction, Abstinence, and Moderation Support.

FSDP Co-founder Carol Katz Beyer Represents the Family Voice at Rutgers University School of Law

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FSDP was privileged to have co-founder Carol Katz Beyer invited to participate on an international panel of experts at the Rutgers University School of Law on October 31, 2018. Randy Thompson, founder of Help Not Handcuffs hosted the discussion on “Drug Decriminalization: The Triumph of Human Rights and Health over the Drug War”45144582_2393306420685983_7391489221489328128_n

Randy Thompson, founder of Help Not Handcuffs, in conjunction with The Open Society Foundations (OSF), The Rutgers Criminal Law Society and the Rutgers Public Interest Law Student Association, coordinated the event featuring Dr.João Goulão, the Portuguese Drug Czar, Kasia Malinowska, Director of the Global Drug Policy Program at OSF, Tess Borden, Staff Attorney for the ACLU-NJ and Carol Katz Beyer of FSDP as speakers.

What was detailed was nothing short of amazing! Portugal, which decriminalized all drugs has almost non-existent overdose deaths. In Portugal, harm reduction is so well developed that it is significantly reduced overdose deaths and the spread of HIV/AIDS and HepC; and they provide superior treatment on demand for those who want it, at less than 1/10th of the cost to taxpayers compared to the New Jersey system

Kasia engaged Dr. Goulão in a conversation and he brilliantly articulated the history of how the Portugal model came to be. He illustrated that change is possible when the goal is to elevate society through the lens of public health with strategies and solutions rooted in compassion and science.

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Panel, from left: Dr. João Goulão, Kasia Malinowska, Tess Borden, Carol Katz Beyer

Tess detailed the egregious human rights violations that the US policies of prohibition and criminalization are inflicting on families.

Carol eloquently elucidated the issues and harms that our families needlessly suffer as a consequence of the war on drugs as well as recommended public health solutions. Carol said, “I cannot express enough how privileged I felt to be present in the company of Dr. João Goulão who articulated so poignantly what transformative solutions in drug policy reform look like”.

Immense appreciation and thanks go to Randy, who did a tremendous job organizing this important event and skillfully moderating. There was a robust Q and A afterwards as audience members representing Rutgers law students, healthcare professionals, and community members.

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Host/Moderator Help Not Handcuffs founder Randy Thompson

I cannot express enough how privileged I felt to be present in the company of Dr. João Goulão who articulated so poignantly what transformative solutions in drug policy reform look like–FSDP co-founder Carol Katz Beyer.

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Attendees included FSDP co-founder Barry Lessin and FSDP members Anne Earle and Lisa Raphael

Because of your ongoing support, we are bringing our communities together, empowering families, restoring health and saving lives!

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PLEASE SUPPORT OUR FAMILIES!

FSDP at The 12th National Harm Reduction Conference in New Orleans, LA

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Thanks to the generosity and support of our friends and stakeholders Team FSDP attended the 12th National Harm Reduction Conference #harmred18 in New Orleans, LA, October 18-21, representing a growing number of families who are adversely impacted by the unprecedented public health crisis surrounding substance use.

This biennial event brought together some of the most creative minds from the US and abroad to address a myriad of complex issues facing the harm reduction movement. A diverse community of people who use drugs, social justice activists, service providers, healthcare workers, researchers, policymakers, public health officials, and law enforcement gathering together determined to put an end to the harms and injustices caused by the War on Drugs.

FSDP is dedicated to serving the needs of our families and our participation in this conference is a heartfelt expression to honor our loved ones who have been lost to overdose and to save the lives of those who remain at risk.

 

FSDP co-founders Carol Katz Beyer and Barry Lessin were privileged to be invited to join harm reduction pioneer and visionary Patt Denning, Ph.D. on her panel: “Loving Someone Who Loves Drugs and Alcohol.”

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Patt outlined specific strategies for family members and friends based on guiding principles of harm reduction including “there are no rules except the ones you make”, “establish your absolute limits”, affirm your values, “identify what’s most important for you” and “tough love is neither, and it feels bad to all”.

The packed meeting room was inspired by Carol sharing how her lived experience inspired her to advocate for impacted families by creating a space to powerfully speak the truth to the powers that be in the broken treatment-industrial complex.

Barry gave an overview of the work of FSDP and shared how family and friends can become empowered by being open to reality-based harm reduction information and sharing it with peers, planting seeds of hope in their communities.

Our dedicated team was on hand to welcome attendees at our exhibit table continuing the conversation, networking and providing conference attendees with educational materials, tutorials and resources.

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Thank you Juan Fernandez Ochoa for sending us the Support Don’t Punish t-shirts. They were a big hit!

The 2018 Harm Reduction Conference comes at a time when harm reduction, health care, and drug policy reform have entered a dynamic and critical phase. The prescription opioid and heroin overdose epidemic has captured national attention, with renewed focus on transmission of HIV and Hep C among people who use drugs. These trends are reshaping the policy and public health landscapes, making harm reduction more urgent and relevant than ever before.

Because of your ongoing support, we are bringing our communities together, empowering families, restoring health and saving lives!HandDonate

Welcome Family Drug Support USA This Giving Tuesday!


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GivingTuesday is a global day of giving fueled by the power of social media and collaboration.

Celebrated on the Tuesday following Thanksgiving, (November 27 in the U.S.) and the widely recognized shopping events Black Friday and Cyber Monday,

FSDP is excited to announce that starting at 5am PST on November 27, Facebook and PayPal will contribute a total of $7M to partner with our stakeholders and match any donation to your designated nonprofit of choice! Giving Tuesday is a not to be missed opportunity to help us support more families by bringing Family Drug Support USA to communities across the nation. Our Facebook friends can also have their gifts matched by using the fundraising for nonprofits option on Facebook for which includes birthday fundraisers and the donate button feature

As a mother, Carol Katz Beyer, who has been personally impacted by the devastating loss of her two children Bryan and Alex, was inspired to co-found Families for Sensible Drug Policy with Barry Lessin to regain control of our families’ health by collaborating with our stakeholders to implement a new paradigm of care and support based on compassion, science, public health and human rights.

Please read this heartfelt message from Tony Trimingham to learn more about Family Drug Support:


“When someone dies as a result of illicit drugs, it is estimated that on average they lose 35 years of their lives (compared to 5 years for nicotine and 15 years for alcohol). Not only does this rob the person of a chunk of their life, it has a massive impact on their family. When my 23-year-old son died from a heroin overdose, not only did I experience profound grief and shock, there was excruciating pain and a massive impact on me, and all my family. If I could get to sleep (which was rare) I would dream of him being alive, then I would wake up to the nightmare. I found myself breaking down on an almost daily basis, and simple everyday tasks became difficult.

 My wife and friends who were suffering their own grief had to cope with my not coping. I would hear his voice in public places and thought I saw him walking along the street. For the first 6 years after he died this level of pain continued and it took a long time before I was able to smile again and enjoy the normal things in life. It is now 21 years and while the pain has subsided and is not as acute, there isn’t a day go by where I don’t feel sad, and miss my son. I have missed out on conversation with him, possible grandchildren, and seeing him progress through life. I have had similar conversation and reflections with hundreds of other families who have lost people, and suffer the same anguish. For this reason, Family Drug Support believes that keeping people alive and safe is the first priority when it comes to dealing with problematic drug use.

In my work with Family Drug Support, I have spoken to more bereaved families in the last six months than I have in the last six years. This is because of the increase in the use of legal opiates, and also because street heroin is back on the radar. The truly sad fact is that these deaths, along with those at music festivals from taking pills, are completely preventable.”

Family Drug Support Training is an opportunity to work directly with Tony Trimingham in an experiential workshop learning specific skills using harm reduction principles and the psychological approach of motivational interviewing to deliver support to those in need. People that successfully complete the training will be able to bring this peer to peer support to their communities.

Please click here for more information about Family Drug Support USA

Meet Tony Trimingham in this video describing the workshop.

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Our families desperately need your help and we urge you to join us as part of a long term solution that will keep our loved ones safe, connected and plugged in to the services that will keep them alive. A watershed moment reflecting our nation’s most significant public health disaster, requires that we as a nation embrace a multi-tiered and realistic approach towards prevention, education and access to healthcare services.

Your donation no matter how big or small helps save lives by forwarding our mission to deliver the message of harm reduction to communities around the world. Please help us reduce overdoses and empower families by educating and advocating for progressive solutions for family support based on science, compassion, public health and human rights.HandDonate

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Sign up HERE to receive our newsletter stay informed on the latest news and events.

Thanks so much being a valued friend to our community. Your generosity and support is  really appreciated and will help make our family voice be heard.

FSDP Testifies at the New York State Assembly Committee on Alcoholism And Drug Abuse

Thanks to our friends at VOCAL-NYFSDP was honored to be asked by New York State Assemblyperson Linda B. Rosenthal’s office to submit testimony to the NY State Assembly Standing Committee On Alcoholism And Drug Abuse on the adequacy of funding for prevention, treatment, and recovery services in New York State.
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Carol Katz Beyer and I had an opportunity to represent the voice of the family to share the family perspective acknowledging that on how to use funds to better ensure that life-saving harm reduction strategies and tools will get into the hands of families before problems develop and therefore be able to prevent many overdoses:

 

“The staggering number of people who are relapsing and dying is unacceptable despite having proven strategies to reduce mortality and improve care.  New York State has made it a priority to emphasize the need to address substance use disorder as a public health issue but we now must take the next steps to shift funding streams to enable universal access to proven life-saving public health tools such as medication-assisted treatment, naloxone, and harm reduction services.”

The full testimony can be found here.

FSDP Celebrating Life: A Town Hall with New Solutions for the Opioid Crisis

Please join FSDP co-founders Carol Katz Beyer and Barry Lessin, Team FSDP and our partners–The Center for Optimal Living, Harm Reduction Coalition, The New School, International Network of People Who Use Drugs (INPUD), New York City Department of Health and Mental Hygiene, New York State Psychological Association’s Division on Addictions, and VOCAL-NY—who are representing our families to demand solutions based on a new paradigm of healthcare that provides a comprehensive continuum of care with multi-tiered strategies that empower families with reality-based solutions.

celebratelife_townhall (FINAL)We are privileged to be represented on the panel of representatives from the fields of public health, psychotherapy, community engagement, public policy, and The New School’s Student Health Services who will present their perspectives on the impact of opioid use, the opioid crisis, and how to reduce the number of overdoses.

We will also be training attendees in overdose prevention strategies and naloxone kits will be provided to those who wish to receive them.

Following an overview of the current opioid use patterns and overdose rates in New York, we’ll discuss the programmatic work that is being done to address the multiple challenges associated with this issue. We’ll hear from people who work with active drug users as well as current and former people using drugs contributing to the panel discussion. In addition, treatment professionals will describe an integrative harm reduction approach to working with people using drugs.

Overdose deaths are preventable and we shouldn’t be punished for making progress in our in our path to optimal health and well-being! Lives will be saved when we shift our thinking about treatment to complement and support public health overdose prevention strategies. A harm reduction-informed continuum of care linking harm reduction strategies to the full array of effective substance use disorder treatments needs to be integrated with overdose prevention efforts.

Families impacted by substance use deserve the best care available. Every other medical condition is guided by best practices and we expect nothing less. We are in the best position to help our loved ones and we demand the information and services required to give us the best chance for successful outcomes.

This event is open to the public and is free of charge.

Join the FSDP Community for International Overdose Awareness Day #IOAD17

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International Overdose Awareness Day #IOAD17 is a heartfelt and emotionally charged reminder for our families that far too many of us have endured the unimaginable loss of our loved ones to overdose.

Last year more than 59,000 lives were lost as a consequence of accidental overdose and each year on August 31, friends and advocates unite in their grief to demand more from state, local and federal agencies. Research shows that many of these deaths could have been prevented by ensuring that our loved ones had access to the same continuum of care offered to individuals diagnosed with other complex health conditions.

Our families deserve person-centered screenings and alternative solutions that meet them where they are with the goal of optimal health and wellness based on individual needs and unique circumstance. The encouraging news is that a preponderance of evidenced based research exists that will increase access to lifesaving services and restore some of the humanity and support that families impacted by substance use deserve and we need your help to raise awareness!
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Families for Sensible Drug Policy (FSDP) is privileged to serve a growing network of families whose ardent stories bear testimony to our global community that seeks to implement innovative public health initiatives with the goal of reducing the harms. We are launching a membership drive to commemorate International Drug Overdose Awareness Day and invite you to JOIN US in solidarity and remembrance for those lost and to demand an urgent public health response to save the lives of those who still remain at serious risk for fatal overdose.

JOIN us for International Overdose Awareness Day and support our families. Sign up now for our membership drive and receive FSDP’s Resource List For Advocates and FSDP Co-Founder Barry Lessin’s articles on Parenting from a Harm Reduction Perspective.

Together, we can change ineffective policies and attitudes shrouded in punishment and stigma and advance sensible health based solutions that offer our families the dignity and healing we deserve.

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FSDP and Our Global Partners Bring a New Paradigm of Family Drug Support to the United States

Our heartfelt presence at The International Harm Reduction Conference #HR17 in May 2017 was a springboard for a dynamic and thought provoking weekend: A celebration of family empowerment that filled attendees with enthusiasm and hope, while offering enlightened strategies, tools, and opportunities for advocacy.

Day 1: Workshop on Peer-Led Family Support Model18664623_1720713967945235_3219150813966158127_n

The two-part weekend that followed was an expansion of our global partnership including Liz Evans and Mark Townsend (not pictured) of New York Harm Reduction Educators (NYHRE) and Washington Heights Corner Project which featured a workshop introducing Tony Trimingham’s Family Drug Support (FDS) model (in center at right with Barry Lessin and me) and an international panel discussing the life-saving value of Supervised Injecting Facilities (SIFs).

Our families have a vital role in the development and resolution of how substance use impacts their home—for far too long our families have not been afforded the opportunity to engage as active participants and problem-solvers. The weekend offered a new paradigm of support for families impacted by substance use.

18581706_10102491791666402_8890817018380267324_n-3The weekend events, highly lauded by a passionate gathering of family members and clinicians, were a milestone for FSDP, allowing us to offer our vision of tangible support for families, based on what families need, expect and experience. This model of support helps families better understand and strengthen the connection between ourselves and loved ones who use substances. The peer-led support groups present viable alternatives for families to explore potential solutions and coping strategies.

Day 2: International Panel about a Public Health Response Proven to Save Lives: Supervised Injection Sites (SIFs)

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We were delighted to have CNN political commentator Symone Sanders (at right, between Liz and Tony) emcee the gathering at the Malcom X and Dr. Betty Shabazz Memorial and Education Center in Harlem. It was a moving interactive presentation before a diverse and engaged audience. The featured presentations were delivered by harm reduction pioneers Tony and Liz, who poignantly shared their own personal stories reflecting the inspiration that led them to do their groundbreaking work that included establishing successful SIFS in Sydney and Vancouver, respectively.

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Evidence from years of research is conclusive that SIFs reduce HIV and hepatitis transmission risks, prevent overdose deaths, reduce public injections, reduce discarded syringes, and increase the number of people who enter drug treatment. Across the globe, there have been no reported fatalities from an overdose in an SIF.

Personal Relevance

My own personal journey as a parent and healthcare advocate was inspired by the compelling and relatable perspectives shared during the presentations, as I too am a mother who is devastated by the recent loss of my precious son and student of the world, Bryan.

Bryan’s life parallels many young lives who, despite a loving relationship with a beautiful new wife, a supportive family in his corner and an amazing circle of friends who believed that laughter was the best medicine, his valiant attempts with sustainable periods of time in and around “recovery” were ultimately circumvented by much of what does not work about a ‘one size fits all’ model. Far too many young lives are tragically being lost to an accidental and fatal overdose that is preventable!  

My own perspectives and belief system came full circle from the early days when our families were first indoctrinated to the mantra of the addiction professionals champing for ‘hitting bottom’ and ‘detaching with love’ as the remedy. Despite a decade-plus of extensive and ongoing attempts by my own family to embrace the recommendations of the traditional treatment industry, our personal situation continued to implode on a downward spiral of pricey interventions, therapeutic wilderness programs, and exorbitant rehabs that over promised and under delivered.

Myths like encouraging us to use the criminal justice system, or advising us that advocating for our child’s well-being essentially reduces us to ‘enablers’ and ‘codependents’, only exacerbated the family issues and compromised health rather than supported it. If only we had the opportunity to turn our focus to empowerment and safeguard our loved ones with viable medical models during those times that they were in active addiction. Many people with problematic substance use have little or no access to evidenced-based care, or simply were not ready or able to embrace a path that was limited to abstinence-based recovery.

Our families deserve person-centered screenings and alternative solutions that meet them where they are with the goal of optimal health and wellness based on individual needs and unique circumstance.

Stay tuned to learn about more of our upcoming events as our momentum moves forward towards the Fall, where we will be representing the voice of the family at the 2017 Drug Policy Alliance Reform Conference.

 

Representing the Voice of the Family at the 2017 International Harm Reduction Conference #HR17

C_DNaZxXgAAUhpMRepresenting our family voices in the global harm reduction community, FSDP Co-Founder Barry Lessin and I enthusiastically attended the 2017 International Harm Reduction Conference #HR17 in Montreal, Canada, May 14-17, 2017.

The theme of this year’s conference was ‘At the Heart of the Response’ and addressed “innovative harm reduction services, new or groundbreaking research, effective or successful advocacy campaigns and key policy discussions or debates. With delegates from more than 70 countries the programme not only reflects the truly global nature of our movement but also addresses key international issues”

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We had the opportunity to meet with our global partners Australian Family Drug Support (FDS) powerhouse Tony Trimingham (right) and Shaun Shelly (below) to identify the issues that are unique to families and bringing the family voice into our home communities. The inspirational and motivational moments were continued with a dynamic and thought provoking celebration of family empowerment that culminated in New York City May 20-21, 2017 with an extraordinary weekend filled with enlightenment and hope. Barry and I are energized and privileged to bring the FDS model of family support to our cherished friends here in the United States. We remain humbled and honored to serve our growing network of families who are asking for non judgmental alternatives to support optimal health and well being for their loved ones impacted by substance use while managing their own needs and self care in the process.

FSDP AC_9Zk_UUwAAB1qWdvisory Board member Shaun Shelly (whom we got to meet in person for the first time!) explaining the challenges and successes in his groundbreaking work in harm reduction service delivery to his native South Africa.

One of the highlights of #HR17 for many of the attendees was the dynamic presentation given by Andrew Tatarsky (right) on “The Scientific Revolution of Addiction Treatment”, exploring how his model os Integrative Harm Reduction Psychotherapy 18558570_1716762775007021_2210259828598535816_o(IHRP) can enhance harm reduction services and make addiction/substance misuse treatment relevant to the majority of problematic drug users who have been turned off or hurt by traditional abstinence-only treatment.

18527769_1714581398558492_4107739766811187219_nPausing to honor the dedication and commitment of our global partners, appreciating the connection and spirit of compassion shared among cherished friends like Zeeshan Ayyaz Shani, who sadly could not attend because of visa related obstacles. Paying tribute to his courageous advocacy and extraordinary efforts on behalf of drug users in Pakistan through his exemplary work with Middle East and North Africa Harm Reduction Association (MENAHRA).

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Barry and Tony discussed the new collaboration of Tony’s Family Drug Support model of family support and FDSP’s commitment to bring strategies and solutions into the homes of our families!. Below, Tony joins me, Deborah Peterson Small, who spoke at a morning plenary on the global priorities of drug policy, and Ernie Drucker, valued mentor to FSDP and author of “A Plague of Prisons”. 
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Stay tuned for more about FSDP’s next steps in our collaboration with Tony’s Family Drug Support to empower families, restore health and save lives…